Work Packages

 

Project partners are working to complete PARTNER deliverables and milestones through 7 Work Packages:

WP1 – Coordination of the project

  • WP leader: AOPD
  • Description: Actions undertaken to manage the project and to make sure that it is implemented as planned.
  • Deliverables: Interim, technical progress and financial progress reports.

WP2 – Dissemination of the project

WP3 – Evaluation of the project

  • WP leader: CCRI
  • Description: Actions undertaken to verify if the project is being implemented as planned and reaches the objectives
  • Deliverables:

WP4 – Analysis and harmonization of data acquisition of the existing national VRT registries

WP5 – Creation of a European registry for paediatric patients with very rare tumours

  • WP leader: AOPD
  • Description: Actions undertaken to create a European registry for paediatric patients with very rare tumours
  • Deliverables:
    • D5.1 – Report on the operative status of the registry structure.

WP6 – Standard of care recommendations for children with VRT

  • WP leader: CURIE
  • Description: Actions undertaken to establish a Working Group, to create a VRT list and to elaborate a standard of cares documents
  • Deliverables:

WP7 – Integration of LHEAR countries in a EU platform dedicated to VRT in paediatric age

  • WP leader: GUMed
  • Description: Actions undertaken to integrate LHEAR countries in a EU platform dedicated to VRT in paediatric age
  • Deliverables:
    • D7.1 – Report describing the results of the EU survey
    • D7.2 – Creation of a manual (in English and local language) to access the virtual consultation system and the PARTNER VRT platform.