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List of acronyms/glossary
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Biobank: A type of biorepository that stores biological samples (usually human) for use in research
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Biomarker: Generally refers to a measurable indicator of some biological state or condition
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CCI: Childhood Cancer International
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CDDF: Cancer Drug Development Forum
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CNS: Central Nervous System
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COG: Children Oncology Group
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CRC/ECRC: European Clinical Research Council for paediatric and adolescent oncology
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CTF: Clinical Trial Facilitating platform
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DG SANTE: Directorate General for Health and Food Safety, European Commission
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EAC: (ENCCA) Ethics Advisory Committee
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EAC: (ENCCA) Ethics Advisory Committee
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ECCO: European CanCer Organisation
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ECTGs: European Clinical Trial group(s) in paediatric oncology
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EICNHL: European Inter-group Cooperation on Childhood and Adolescent Non Hodgkin Lymphoma
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ENCCA: European Network for Cancer research in Children and Adolescents
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EORTC: European Organisation for Research and Treatment of Cancer
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EPAAC: European Partnership for Action Against Cancer
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ERN: European Reference Network(s)
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ESMO: European Society for Medical Oncology
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EU: European Union
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EURAMOS: European and American Osteosarcoma Study Group
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FP5, FP6, FP7: EU 5th/ 6th/ 7th Framework Programmes for research and innovation
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Horizon 2020: EU Programme for research and innovation (2014-2020)
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I-BFM: International BFM Study Group
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ITCC: Innovative Therapies for Children with Cancer
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LTS: (ENCCA) Long-Term Sustainability (working group)
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MAC: Members of the Parliament (MEPs) Against Cancer group
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MOA: Mechanism(s) Of Action
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NaPHOS: National Paediatric Haematology-Oncology Society-ies
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PanCare: Pan-European network for Care of survivors after childhood and adolescent cancer
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PanCareSurFup: PanCare childhood and adolescent cancer SURvivor care and Follow-UP studies
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PICORET: Population Improvement in Childhood cancer Outcomes through Research, Evaluation and Training
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PIP: Paediatric Investigation Plan(s)
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POETIC: Pediatric Oncology Experimental Therapeutics Investigators’ Consortium
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PPAC: (ENCCA) Parent and Patient Advocacy Committee
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QUARTET: QUAlity and excellence in RadioTherapy and imaging for children and adolescents with cancer across
Europe in clinical Trials
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SAB: (ENCCA) Scientific Advisory Board
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SIOPE: SIOP Europe, the European Society for Paediatric Oncology
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SIOPEL: SIOPE-Epithelial Liver Tumour Study Group
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SIOPEN: SIOP Europe Neuroblastoma Group
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SSH: Social Sciences and Humanities project
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TACL: Therapeutic Advances in Childhood Leukemia and Lymphoma
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TYA: Teenagers and Young Adults
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A EUROPEAN CANCER PLAN FOR CHILDREN AND ADOLESCENTS