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g
In the 2015 Health programme, the
European Commission called for a
Joint
Action on Rare Cancers
that will be
implemented jointly with EU Member
States. This will provide the framework
for the implementation of part of the
SIOPE Strategic Plan and for cooperation
with adult oncology in the field of rare
cancers.
In 2014, SIOPE effectively obtained the
commitment of EU institutions and
civil society representatives to support
young people with cancer, through their
endorsement of the SIOPE-ENCCA-ICCCPO
Manifesto for Paediatric Oncology. This
document was signed by 20 members of the
European Parliament, setting up objectives
to advance childhood cancer research,
treatment and care. After the European
elections, this document became an even
stronger advocacy document for SIOPE on
the long-term.
Additionally SIOPE and the European
paediatric haematology-oncology
community will contribute to the
development of oncopolicy in Europe in the
fields of multidisciplinary care, access to
innovation and development of e-Health.
SIOPE will join efforts with the European
CanCer Organisation (ECCO) along with
European Society for Medical Oncology
(ESMO) and other European societies.
Training and education programme
The aim of this programme is to encourage
high quality clinical and basic research as
well as the delivery of high quality care in
paediatric oncology throughout Europe.
This is a remit of SIOPE and focuses on the
organisation of educational courses and
on the revision of the training syllabus in
paediatric oncology.
SIOPE is involved in several training courses
to develop the knowledge of health
professionals on new and state-of-the-art
therapies and allow them to gain more
practical skills in the treatment of paediatric
malignancies:
g
The SIOPE-ESO Masterclass in paediatric
oncology: practice-oriented training
with a focus on the application of the
most recent research findings to clinical
practice;
g
The ECCO-AACR-ASCO workshop on
“Methods in clinical cancer research” in
Flims, Switzerland: introduction of junior
clinical oncologists to the principles of
good and innovative clinical trial design
and methods;
g
The SIOPE-ENCCA-ENTYAC European
Course on the treatment of teenagers and
young adults (TYA) with cancer: centred
around multiple disciplines;
g
The joint SIOPE-ESMO training
programme on TYA.
THE SIOPE STRATEGIC PLAN
36
“The EU Data Protection Regulation is a debatable piece of legislation which
could threaten childhood cancer clinical research” (Nikolaus Forgó, Institute
for Legal Informatics, DE)